--Everything, "All's Quiet"
I'm sorry we have left you dangling all day, but there really hasn't been much to report. Overall, that's good. Jay's rhythm is still spot on normal. His heart is continuing to contract a little. You can still see his little heart beating. He still alternates between sleeping and moving his arms and feet around a bit.
The downside is there isn't any great news to report either. We were all hoping for a similar improvement to what we saw yesterday. Unfortunately, if there has been any improvement, it is minor (and it depends on which of his 284 doctors and 153 nurses you ask).
Several of his doctors are pointing to tomorrow as the Big Day in which they hope to see some improvement. He will have been on ECMO for 5 days tomorrow night. The goal was to have him off ECMO by day 7, and to do that, they will need to start weaning him off pretty soon.
Tomorrow they will perform another echo (ultrasound of the heart) to look at how well it is contracting, and then decide if they can try to decrease his support from the ECMO machine. We're praying, crossing our fingers, and rubbing our lucky pennies that his heart is stronger tomorrow.
In other not-so-hot news, Luke is still fighting a nasty cold with a hacking cough, which everyone assumes is a rhinovirus. Awesome. He's eating well, has no fever, and is generally happy ... though JenB/Lisa/Crystal/Melissa might see that differently after the all night cranky party they got to enjoy with him. We're keeping him far from Jay, and making sure everyone who's been at the hotel changes clothes & washes hands before coming to see Jay. We haven't taken him to a doctor (we've seen enough of them lately!) but we hear that the ER here at CHOP has an urgent care level, so we'll probably do that if he isn't improving significantly in the next day or so. Cause we need some more medical bills from CHOP.
Thanks again for all of your prayers. This room is getting a little cozy, we're all tense, and we're running low on positive attitude. Your comments and your support are little moments of sunshine in our days.