Let us rejoice
And be glad in it!
Well, as predicted, Dr. S came in to observe while the echo crew was here to take today's pictures of his heart. (I stepped out because I couldn't handle another "turn off the faucet" moment!) And while his pressures and oxygen saturations did drop when they turned the support down to 20%, in general, he did pretty well. So he passed the test ... and they are taking him off ECMO this afternoon. He didn't make an A+, but he scraped by. This afternoon, we need to see A+ level work.
We are happy-scared. We've waited for this day for a week, and we are thrilled at this big step. At the same time, we're nervous that his heart still has a long way to go for complete healing. They have increased the medications that are supporting his heart (Better living through chemistry, right Dad?!) and we're hoping that those are going to continue to improve his heart.
So, this is The Day. The BIG day that we've been praying for. I know that it is a day that the Lord has made, and I'm trying very hard to rejoice in it and to let the rejoicing help me float on top of the fear instead of drowning it it. I'm constantly reminded that we have a ba-jillion prayers being said for us, and I can't help but be reassured by that. But if you want to lift up one more late this afternoon, make it a prayer for Jay's strong heart.
20 comments:
I am happy-scared, too, just waiting to hear how it goes! Thanks so much for keeping us all (and there are many who don't even comment that are reading along!) up to date. We're with you in spirit and prayer! Good luck, Jay!
If I had a few more brain cells working today, I'd be really creative with where my brain tried to run with "Dr. S". Maybe envisioning Jay with a tall cat in a hat standing over him for these tests is a good way to think of it.
Know that you will be completely bathed in prayer this afternoon.
Cara Lynn
I feel like I'm holding my breath already! He'll do great, and then you're one step closer to picking up and giving him a great big hug! Know that our prayers are with Jay and all of you this afternoon.
Karen
Loving thoughts and prayers coming at you all.
Let's hear it for the jAy-Team.
Love,
Annie
That little Jay has got that attitude and ability that your whole family has shown and CAN do it. GO Jay!!!
This IS the BIG DAY - and I really feel like Jay is up to the challenge. Wish I were there - just what you need is one more relative to sit and wring her/his hands!! I think I'll just pray instead....LYTB, AJ
Positive vibes, thoughts, prayers and hugs coming Jay's way! Go Jay Go!
I am continuing to pray for you all. God knows what is needed and Jay sounds like such a fighter. I have faith that he will rise above this challenge and his heart will do what it needs to do.
I am sending prayer and happy thoughts. :-)
Another song/hymn for you...Great is Thy faithfulness...moring by morning new mercies I see...all I have needed Thy hand hath provided...great is Thy faithfulness, Lord ,unto me!
Praying for the big moment this afternoon to go without complications!
Lynette
We continue to pray for Jay everyday and will definitely crank it up a notch this afternoon!
Thea and Louise
Praying for Jay and for all of you...
Love
Susie
Jay be strong this afternoon!! We all love you and are praying for strength for your heart!!
BIG prayers sent!!
The work God started, He will finish until the end. We are praying for complete healing.
Love You,
Aunt Ali
We're having a powerful thunderstorm right now in our area...can't help but be reminded to pray for the beats of Jay's heart to be regular and strong this afternoon.
Big Booms!!
Jay can do all things throgh Christ, who strengthens him!!! Praise God for this day and for the great progres Jay has made. Glory be to God! :-) My family and I are still praying for your family, and especially Jay. :-)
Post above from Ashley B. in Admissions. Big hugs!!
Jen,
I have spent the last 45 minutes catching up on your story on your blog. My heart has broken and rejoiced along the way for you and your family. I am praying for more good news and continued succes for little Jay.
Big hugs and lots of prayers.
Erin
May the long-distance prayers reach into Jay's room tonight and surround you with warmth and comfort. May you feel the hands of God holding you up and the arms of friends hugging you tight.
We are still praying for Jay, Luke, Derek and you too Jen.
Dee and Bob
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