all over the world
-Ricky Nelson, Traveling Man
Today is a bit of a hard day for all of us. When we had originally planned our trip, we had been told to expect to be here about 2 weeks. Today is the end of that 2 weeks, and so we're checking out of the awesome hotel that has been our home and traveling to the Ronald McDonald House. We have made friends with Toni, who works at the front desk and considers the place to be her house. We truly felt like guests in her home (albeit a BIG 12 story mansion of a home!). We knew there could be complications that could keep us here longer than 2 weeks, but we always assumed those were things that happened to other people.
So, my folks are headed back to Raleigh for work, doctor's appointments, and to try to (briefly!) return to reality. Granna Jane is staying with us at RMH to keep Luke. At the same time we're saying goodbye to my folks, we also said goodbye to my aunt and cousin who'd come for a couple of days. Between all those goodbyes to all those caring folks, I'm feeling a bit down. I've never been good at goodbyes, and goodbyes here are the hardest of any I've ever had to say. I don't want people to leave! It's funny - this room can feel so small and cramped and full of people and all I want is to be alone with my baby boy. Then, all of a sudden, it seems so empty and I'm so sorry that there's no one here with me.
No medical news to report. Jay is slowly but steadily coming down on the heart meds. He's off epinephrine entirely which is a great big step. Others are being slowly tweaked, and so far his blood pressure and heart rate continue to be stable. They are tweaking his ventilator settings as well in preparation for the day when he will start breathing on his own. He's not there yet, and we don't really expect that big step to happen until the latter part of next week. They are doing chest PT, which consists of a percussor (resembles a mini jackhammer, and is about that loud) which thumps on his chest to break up the goo that's accumulating. He's not much of a fan, but frankly he is not a fan of the ventilator either. He's tried to pull it out on more than one occasion.
So, pray for safe travels for all those who are heading back to the real world. Tomorrow we'll report on our new digs at RMH!