Thursday, August 19, 2010

Last night...

...thinking about last night
Last night
Thinking about last night
-Traveling Wilburys, "Last Night"

All's well from the CICU. Jay was still a little "jumpy" last night when we finally went to the sleep room around midnight. He's on a few different meds to help him sleep & relieve pain, but the main one he was on (isoflurane) was a gas thru the ECMO circuit, so he can't get it anymore. Apparently some kids coming off iso get the shakes, and the poor baby has been shaking like a leaf. And it's breaking my heart.

It's funny what I can handle and what undoes me. Giant tubes of blood coming out his neck, running through a machine and back into his neck again? No biggie. Seeing a ventilator breathing for him? Eh, that's life in a hospital. The burn mark on his chest from where they shocked him during CPR? Makes me sick on my stomach. The sound of them suctioning spit out of his mouth? Sent me running from the room.

Jay's blood pressure did drop a bit during the night, and his temp did rise a bit as well. But they upped the medications a bit and gave him some Tylenol to bring the fever back down. And he seems to be settling back into a restful groove. I don't plan to really relax again. Ever. But I'm not planning to breathe until we're past the first 24 hours. He's still a very sick little boy.

16 comments:

Anonymous said...

You are constantly in my prayers and thoughts, even though I don't know you, I feel you in my heart...

Mindy Marshall said...

Glad the night was relatively uneventful. Praying for continued healing and rest for Jay & his heart. Love you!

Anonymous said...

Offering love and prayers for Jay continuously. The list I forward updates to grows everyday. We will all keep Jay in our prayers. Take a deep breath, think of the good things going on and hang in there.

Debbie Gilland

Anonymous said...

I'm thankful that his fever is responding to the tylenol and that he's settling into another groove of rest. (I hope you and D were able to get just a little bit). In thinking of the 24 hours, you're at least half way there.

We're thinking of you all and praying all will be well.

Lynn and Scott

Stacy said...

Glad to hear he's moving in the right direction. Still thinking of you and praying for you guys.

blair said...

Wow! Feeling so thankful for the progress he has made and just in awe of the Mommy strength you have maintained during all of this. All of you are doing an amazing job. We are, of course, still praying for God's constant healing hands on Jay's heart as well as comfort for you and Derek.

With Love,
Blair & Jeremiah

Anonymous said...

I can't even imagine what you are going through. I am thanking God for the answers so far and will continue praying for His healing hands on Jay and His comforting hands on you.

In His hands
vickie

Ann Lawrance said...

God bless Jay, you , Derek, Luke,Lala, Popper, and Jane. It takes a family, doesn't it? I'm praying for Jay's continued improvement.
Love you,
Annie

Emily Erin said...

Lots of prayers coming your way (and Jay's way too, of course!). You have all been very, very brave and I'm glad that things are at a calm(er) state relatively.

Archie Gupton said...

'Put me in Coach,
I'm ready to play today'
Day 1 ECMOless
Hi Toolboy!
Day 1 ECMO less...
Jay, you have great parents, and will always be with you. Your Mom has it right...the machines, the livegiving appendages, well are the tools you need now. But, seeing the results of the tools, well it hurts, that is what Moms, Dads, & family knows and shares. You know Jay, you have been a great inspirition to all the Christian friends you have, and know of you because of your Mom Jen, Dad Derrick, LaLa &.... When you think you can't do more, well, I know your Christian pals have made it easier for you to ask for a little help.
See you soon, Jay, you are the Tool Boy!!
a&u for all your FPC praying pals!

David said...

Jenn AND DEREK, When the time is right I will share some things that our own Libby Barnes shared that I remember often about US, God, our feelings and life... But for now you continue doing what you're doing and we'll keep doing what we're doing (prayer is a great thing)...

Again Fistbump and hugs from Dillon and the Tyndalls to young Master Jay.

Anonymous said...

We're so glad to get your updates and check once or twice each day. You are wonderful, caring (and probably very tired!) parents, and we pray for you two and Luke as well as for Jay.

Anonymous said...

Jen, Derek, Jay, Luke,Popper, and Laura,

Praying everyday....love you guys so much!!! Strength is definitely coming your way via God and the Angels. This is a wonderful way to keep all of us informed so our prayers can be super specific!!! Get rest as you can, and do not forget to eat to keep up your strength as well.
Debra Anne, Charles, Mike and Liz

Anonymous said...

We are still praying and keeping a watchful eye on updates from you all. We are thankful for each minute, hour and day that Jay's heart gets stronger, and our prayers are that his healing will continue and that you will be able to sustain your incredible strength in the face of all of this. Prayers and hugs from all of the Underwoods

Anonymous said...

Jen,

I know it is hard, but he has come so far this week! We are still praying and reading and thinking of him.

Dee and Bob Derr

Libby Barnes said...

Jen, Table 24 is staying up on Jay's progress and your well-being. You can be assured of our prayers and thoughts and brightest hopes.

It is comforting to see your fantastic family picture each time I check your blog. Thank you for keeping us updated so that we can remotely participate in this journey with you all. Hope you can feel the love and care coming your way.